Quick Exit
FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Friends, families and carers
Friends, families and carers

Getting along with others, living with a partner with Dissociative Identity Disorder

Getting along with others, living with a partner with Dissociative Identity Disorder

Hi there everyone, for the purposes of this post my name is Werm.

 

I am reaching out for some support or insights of others. My long term partner has recently been diagnosed with DID, this has made a lot of experiences make a lot of sense. We are both still learning and understanding what this means for them, and the want's and needs of their alters.

 

For some context both my partner and myself have complex mental and physical health histories, and I have been their main carer since they contracted long covid and have had severe subsequent health issues since 2022. They have unfortunately lost a lot of independence due to this, and this has effected their mental health greatly. I, being a helper by nature, like to do what I can to lighten their load however I can struggle to instinctively support their independence because of this, just doing things for them because it is easier. I have been trying my best to break the habit of this but when I am tired and dissociating myself it can be hard. Sorry for the long prelude but I swear this is important context.

 

The situation that I need help managing is this, my partner has an alter who greatly craves independence and has built up resentment towards me in not fostering their independence more or leaving them to sort things out them self. I have spoken with Host of my partners system (who fronts majority of the time) and they do not feel this way. They aren't regularly able to access the feelings or memories of this alter so it can be hard to actually work things out. They only tend to switch into this alter when extremely dis regulated.

 

At the moment when this alter surfaces I mainly apologize for not being able to better support their independence, state that I am trying to be better at supporting their independence, assure them that I love them and that I am here if they need me. This is okay but they feel angry that I feel sad when hearing criticism and say it is not worth it. I am trying to be better at accepting criticisms and improving and have spoken at length with my partners host about it but they are never around long enough to have chat about it.

 

Usually there will be a point where my partner's host switches back in, there is a moment directly following the switch when they remember what their alter has said and they are usually apologetic on behalf of their alter.

 

I am unsure if I am doing the right thing in seeking resolution, if I should give them more space or if there is something else that I can do to ensure they feel safe to decompress. They are adamant about not asking for help, even if it harms the host because they don't want to rely on me. 

 

I would love the input of anyone who has a lived experience of DID or loving someone with DID and how to navigate alters that have different expectations, empathy levels and desires of the host.

 

I am also open to other that have any creative ideas about creating a safe place for this alter when they come out. I have thought about making a calm box for them with their host so they don't have to rely on me to get their meds and stim toys etc. 

 

8 replies

In response to: Getting along with others, living with a partner with Dissociative Identity Disorder

Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Hi @wermonastring and welcome to the forums. 

It sounds as though this has been really difficult for both you and your partner, learning to navigate a caring relationship and this one alter that responds differently to your caring-style. I don't have lived experience of DID myself, but I wanted to tag a few members here who might have some knowledge on this topic, just in case they have any guidance to offer @DownMoreThanUp @The-red-centaur @Till23 

In response to: Getting along with others, living with a partner with Dissociative Identity Disorder

Re: Getting along with others, living with a partner with Dissociative Identity Disorder

@wermonastring Hi and welcome to the SANE

 

i love to respond in more detail, but i'm rather unwell today i have no energy to write a responds right now. Hopefully tomorrow.

In response to: Getting along with others, living with a partner with Dissociative Identity Disorder

Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Hi @wermonastring and welcome to the forums..

I know there are some people on the forums who identify with a diagnosis of DID and have spoken about it in the past.

There may well be others. As you probably already know, many/most people with DID do not often talk about it openly.

I know a little bit about it but do not identify with the diagnosis, although I experience dissociation, it is quite different.

I just want to say from your post it sounds like you are doing an amazing job of supporting your partner. You seem to have a very good understanding of the condition and seem very accepting and are obviously trying to do your best.  

Also, I just want to say remember to look after yourself, this is such an important thing to remember for both your partner and yourself.

I am presuming here, but it seems your partner has a psychiatrist or psychologist who has made the diagnosis. I am wondering whether you or your partner is able to ask them about strategies for dealing with this particular alter. Also you are probably aware there may well be other alters, that are not fronting who are also involved.

Sorry, I cannot really provide much/any advice.

You have done well to reach out and I hope you are able to find some strategies

In response to: Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Re: Getting along with others, living with a partner with Dissociative Identity Disorder

@wermonastring Sorry i took so long to reply, still not feeling all that well but would like to respond.

 

First of all good on you standing by your partner and accepting his alters in your life. It has been the love of my wife that helped my healing most, even though at times i have also been really angry with her, not understanding what i caused her in the alter i was not in now.

 

What worked best for me was GOOD counselling. Where the councillor skill fully helped me look into parts of my life i had been to scared, or unwilling, to do so. For me it was the trauma underneath my alters that needed to be unearth. Could it be that the counselling your partner gets now  does not resonate with (one of) his alters? For such can be tricky i know to be true. Trust is so very important to be able to go back to those anxious times safely. 

 

The councillor who ended up helping me only did so for i trusted him (mainly because he was survivor of trauma as well, before he became a therapist, and because his working model was based on love, which resonated with my faith.) However i went through other counsellors before i met him, and like as with your partner got nowhere when it came to the root of the problem.

 

i have been taught many personal skills to manage myself by this therapist that have helped me since 2016 to merge my alters into much more oneness of inner being. And although this is an ongoing process i have been extremely happy to see this happening and i have been getting on heaps better with myself and my wife during this time.

 

In a nutshell not until i had been back to the times of my trauma, and voluntarily let go of the loneness, lovelessness, helplessness, shame, guilt, hurt, anger and so much inner terror and pain, not just once, but time and again, in what my therapist would call small bites. Doing this opened up the opportunity to re understand those horrific times i lived the trauma, and i as a child had internalised childish, not wisely or even sensibly, but very reactionary.

 

i know it sounds easy but such where some of the most difficult times in my life, and often time it would take months to reach the core of the issue, un-layering the layers covering it, by taking small bites, so i would not emotionally be overcome.

 

i hope this can be helpful to you. If you have more questions please feel free to do so. And although my wife is not on SANE, if you need specific answers from her about this, i can ask her for you and pass it on.

 

Peace.

 

 

 

 

 

 

 

 

In response to: Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Thank you so much, this response has been both informative and incredibly validating.

 

My partner has only recently realized that they have been experiencing life through their alters so in terms of counselling it is still an area that they are exploring. Their psychologist is currently undertaking personal development with an expert in DID inclusive therapy for another client which is fortunate for us. Unfortunately they have been taking some time off over the past couple of weeks but they have an appointment coming up. 

 

I had a deeper talk with my partner and we uncovered that their is some underlying anger that they believe this alter could be feeling.  I contracted COVID from a family function and passed it on to them causing an extreme exacerbation in their physical illness. Due to family Christmas parties coming up (and their current state of ill health) this may have triggered this alters response.

 

Their working theory is that this alter is trying to protect them in the way that they learned to protect them self in their youth, by shutting others out to avoid harm. 

 

I will show them your response as I think they will find it quite interesting and validating.

 

Thank you again for taking the time to respond, you have made this experience feel a little less lonely. Take care of yourself and I wish you all the best.

In response to: Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Hello @wermonastring 

how are you going today my friend , we are here for you and sitting with you 

 

@DownMoreThanUp , @Till23 , @Ru-bee 

In response to: Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Hi Shaz,

 

Doing well today 🙂 I attended one of the recovery club group Empowerment sessions last night and I got to reflect on the things that I do well. That's something I don't often focus on so it was nice to take the time to care for myself. I am trying to focus on that more 🙂

 

How are you doing today?

In response to: Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Re: Getting along with others, living with a partner with Dissociative Identity Disorder

Hello @wermonastring , that sounds good My friend 🧡 

 

A little tip to put a  @ in front of members names so they can receive your message and reply back to you ☺️ 

 

@tyme 

Reply to thread

to reply.